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First, a big "THANKS!" to our families, neighbors, friends,
and even total strangers that have helped with prayers, wishes, calls,
meals, cards, gifts, watching the dog, picking up mail, the list goes on and
on. We are new to Texas, and have no family here. Your
generosity has touched our hearts and helped more then we can ever express.
We are normally a very private, self-supporting, and proud
family, and we feel very uncomfortable asking for help. Some of you ignored
us and saved us from ourselves and our own pride. THANKS TO YOU!!
It's not normally in our nature to ask for help. I'm making
an exception when it comes to our son, and the other families affected by
LCH. Here's how you can help:
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Donate
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Check out Logan's Gift Shop.
All items sold raise awareness for Histiocytosis and needed funds for
research. |
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The
Big Fix is a cross-country bike ride to raise awareness and research
funds for LCH. Logan has a fund-raising page for this epic event
here. |
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Buy an
arm-band
 and wear it!
Get extra's for friends, family, and the nurses and doctors that treat our
children.
You can buy 5 for only $12 (shipping included)! |
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Because LCH is so rare, its an "orphan disease," which
means no government funding. The only funds for research are through
donations like yours. Thank You! |
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Buy an Awareness pin
and wear it!  |
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Make a direct donation. Make your check payable to "Histiocytosis
Association of America" and mail to: Histiocytosis Association of
America, 332 North Broadway, Pitman, NJ 08071. If you would
like, please indicate "in honor of Logan Johnson" on your check. |
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Histiocytosis Association of America (HAA) is the clearing-house for LCH,
and they have lots of great ideas (For example, direct your United Way
donation to HAA). |
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Please be aware that many employers
will match your donation if you just let them know about it! |
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Promising research is being done at John Hopkins University.
Read about
it and donate here. |
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Prayers for Logan and all the other families fighting LCH
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They really help, and we appreciate every one of them! |
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Learn about the disease
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There's links to lots of info here. Learn and then... |
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Inform others
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Since it's such a rare disease, not many people are
aware of it. That includes the doctor's that we count on. We were lucky
to get to a Hem-Onc that knew about LCH and was able to diagnose
quickly. As I said, we're normally a private family, but we will gladly
talk to the press or anyone else who will listen if it helps the cause.
The more who know, the more that will work towards a cure and
prevention. |
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Watch your own children and grandchildren
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Not to be an alarmist, but never in our wildest dreams
did we expect "cradle cap" and an outer ear infection to be indicators
of something so serious. Most cradle cap and ear infections aren't
indicators of LCH; but learn about the disease, and let a little red
flag go up in your head when you see this. Most doctor's don't know
anything about the disease. |
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